Campaign Team Member
Twitter - @PaulJohnFloyd
In early 2017, after five years with Alzheimer’s, my wife’s mother suffered a near-fatal stroke. It wasn’t long before we found ourselves in an NHS Continuing Healthcare (CHC) assessment meeting, with the hospital keen to free up a bed by discharging her to a nursing home. The stroke had left her severely disabled and needing all care, but the Clinical Commissioning Group concluded it was ‘social care’ she needed, having first established she was a homeowner with savings.
A second assessment eight months later with a different CCG came to the same conclusion, but again it seemed finances were a key factor. Sadly, my mother-in-law passed away in November 2018.
After unsuccessful appeals at local and national level, we now find ourselves at the Ombudsman stage with both CCGs. However, recent comments by the caseworker suggest she thinks the original decision was flawed.
Over the years we’ve amassed a huge amount of evidence by recording all meetings and using subject access requests to obtain withheld information. Eyebrows were raised at the Metropolitan Police last year, when the specialist crime unit reviewed our evidence as part of Philip Mathias’ allegation of Misconduct in Public Office against Simon Stevens, CEO of the NHS.
The system is designed to wear you down and it would have been easy to give up, but I’m determined that others are not subjected to the same injustice and levels of stress that our family has had to endure.