Rear Admiral (rtd)
My mother had severe dementia and numerous other serious healthcare needs. After a two-year battle with Wiltshire CCG, I eventually recovered £200,000 of retrospective CHC funding (for my 90-year old father) to pay for her nursing home. To achieve this required a huge amount of complex analysis, over one hundred letters and three meetings. The CCG did everything possible to avoid making an eligibility decision. This included ignoring and grossly distorting the evidence contained in her care records. An Independent Review Panel found that the CHC regulations had been contravened in multiple ways. After further analysis, it was clear that many CCGs operate similarly aggressive CHC avoidance regimes. I then formed a campaign team, all of whom have had dreadful experiences of other CCGs that have failed to comply with the CHC regulations.
On behalf of those who have been less successful and unlawfully denied CHC funding, I am now taking legal action against the Government and NHS England to expose this scandal and to hold them to account.